This grant funds research to collect and analyze longitudinal data on children and adults with spina bifida receiving care in specialized clinics. It also supports implementing and evaluating the UMPIRE protocol to improve urinary and kidney management in young children with myelomeningocele, aiming to enhance care and finalize treatment protocols for ages 0-10.
Eligible applicants include state, county, city, and special district governments; independent school districts; public and private higher education institutions; federally recognized Native American tribal governments; nonprofits with or without 501(c)(3) status; for-profit organizations excluding
